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| Agony of Butterfly Boy: Meet inspirational EB sufferer who raised £65k despite ...Butterfly Boy Jonathan Pitre has skin so delicate it falls away at the slightest knock – and every day is spent bandaged neck to toe to keep out infection. Jonathan, 14, has one of the most severe cases ofepidermolysis bullosa in the world. It means ... Mirror.co.uk - Sat, 08 Aug 2015 11:52 https://lookfordiagnosis.com/news.php?lang=6&term=Epidermolysis+bullosa |
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